Nomenclature Working Group (NWG)

CO-CHAIRS

Marie J. Béland
Rodney C. G. Franklin
Jeffrey P. Jacobs

View a list of our meetings.

The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease (ISNPCHD) was established to standardize and maintain an international nomenclature system to enhance global communication and facilitate patient care, teaching and research into paediatric and congenital heart disease across disciplines.

The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease is hereafter referred to as the Nomenclature Working Group (NWG).

The Nomenclature Working Group is a committee within The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease.

The purposes of the Nomenclature Working Group are:

  1. To standardize and maintain a comprehensive and all-inclusive international nomenclature system for paediatric and congenital heart disease through the processes of de novo coding and crossmapping existing nomenclature lists including, but not restricted to the following (alphabetically listed):
    1. Canadian Congenital Heart Disease Codes
    2. Current Procedural Terminology (CPT)
    3. European Paediatric Cardiac Code of the Association for European Paediatric Cardiology
    4. Fyler Codes, Children’s Hospital, Boston
    5. International Congenital Heart Surgery Nomenclature and Database Project of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons
    6. International Statistical Classification of Diseases and Related Health Problems of the World Health Organization (ICD-9, ICD-10)

    The name of this comprehensive and all-inclusive international nomenclature system for paediatric and congenital heart disease will be the International Pediatric and Congenital Cardiac Code (IPCCC).

  2. To maintain regular communication with the ISNPCHD, the international paediatric and congenital cardiology and cardiac surgery communities and related disciplines, the healthcare industry, and governmental agencies, in order to disseminate information regarding the IPCCC and encourage its universal use.
  3. To provide access for these groups to communicate with the Nomenclature Working Group.
  4. To maintain, preserve and update the IPCCC, as well as provide ready access to it for the international paediatric and congenital cardiology and cardiac surgery communities, related disciplines, the healthcare industry, and governmental agencies, both electronically and in published form.